tag:blogger.com,1999:blog-3684138792681660769.post7641646850286385839..comments2023-04-14T02:10:02.427-07:00Comments on Grace Lines: The Need to Laugh!Christinehttp://www.blogger.com/profile/15572539463133157833noreply@blogger.comBlogger10125tag:blogger.com,1999:blog-3684138792681660769.post-19571241758760684442012-11-21T09:31:08.612-08:002012-11-21T09:31:08.612-08:00Haha...definitely!! Thanks :-)Haha...definitely!! Thanks :-)Christinehttps://www.blogger.com/profile/15572539463133157833noreply@blogger.comtag:blogger.com,1999:blog-3684138792681660769.post-24571020888282149472012-11-21T09:28:31.164-08:002012-11-21T09:28:31.164-08:00I am so happy that I made you Laugh! You are alway...I am so happy that I made you Laugh! You are always cracking me up with your comments. Nothing wrong with making lists. I do the same, every night before I go to sleep, I write out what I have to do the next day. And then I still forget and wind up at the doctors office on the wrong day.<br />After the Starry Night benefit we will take a break from our CMT and just have fun! Vegas here we come!<br /><br />https://cmtnyus.wordpress.com/cmtny1https://www.blogger.com/profile/09355335483363322229noreply@blogger.comtag:blogger.com,1999:blog-3684138792681660769.post-83353016136453599972012-11-20T14:50:55.289-08:002012-11-20T14:50:55.289-08:00Hi Kathryn...welcome to the blog! I think that is...Hi Kathryn...welcome to the blog! I think that is one reason CMT is so often misdiagnosed or undiagnosed--symptoms can vary greatly from one individual to another, and we often learn to push through much of the symptoms and pain we can experience. My symptoms (especially through the past 10 years) have gotten worse in a lot of areas--the biggest being with my back and core muscles. Before that point I pushed through most of it, and though CMT certainly effected me, it didn't stop me from doing most of what I wanted to do. I think now what sometimes stops me in my tracks, is the fatigue and pain I live with daily...and I am still going through a 'learning process' in figuring out how to deal with it, and manage it as much as possible! As far as my type of CMT, I'm still searching for that answer (I was diagnosed in 1996 at age 25 and told that I had CMT, but there are 50 types of the disease, and each one is tested individually...it can often take time and a lot of money to sort through all of them.) I hope that helped to answer your questions, and you continue to read! :-) Christinehttps://www.blogger.com/profile/15572539463133157833noreply@blogger.comtag:blogger.com,1999:blog-3684138792681660769.post-4099082276892795562012-11-20T12:04:46.903-08:002012-11-20T12:04:46.903-08:00I just happened to come across your blog. I too ha...I just happened to come across your blog. I too have CMT, Type 2 though. I'm not sure what type you have, or when you were diagnosed, I'm assuming later in life based on things you mentioned in this post. I've been living with CMT since I was 4 years old and I'm now 31 years old. I suppose what motivated me to comment was the mention of symptoms. What kind of symptoms are you and, others who commented, having that prevent you from doing activities? I guess since I've been living with CMT all my life, I tend to push through fatigue and minor aches and pains. Just curious to hear others perspective. KathrynO.https://www.blogger.com/profile/03934805722460561402noreply@blogger.comtag:blogger.com,1999:blog-3684138792681660769.post-56496686846161796262012-11-18T12:16:20.973-08:002012-11-18T12:16:20.973-08:00Thank you, Al! I hope there's much spontaneit...Thank you, Al! I hope there's much spontaneity in both our futures!! :-)Christinehttps://www.blogger.com/profile/15572539463133157833noreply@blogger.comtag:blogger.com,1999:blog-3684138792681660769.post-65336124357183985562012-11-18T11:47:06.609-08:002012-11-18T11:47:06.609-08:00I also am a " list - maker " , but not f...I also am a " list - maker " , but not for the same reasons !<br />Mine is simply because of a chronic mind disorder / you may fill in the missing initials [ lol ].<br />As a friend , and avid reader , I try to educate myself with as much information on "CMT " as I can , including reading ..It's your insight , personal accounts , where I learn the most ..... also from those who comment .The concept of having to drop one activity to fit in another , had never crossed my mine !My amazement has always been at your huge smiling face, graceful personality , and giving spirit ! In my dealings with you , both business and friend , you seem to wear that wonderful smile 99.9% of the time . <br />My wish for you is many many moments of " spontaneity " ! ALhttps://www.blogger.com/profile/03740045585028020709noreply@blogger.comtag:blogger.com,1999:blog-3684138792681660769.post-89817112440921398412012-11-16T08:06:03.939-08:002012-11-16T08:06:03.939-08:00Yes, a break in symptoms is always much appreciate...Yes, a break in symptoms is always much appreciated, and sometimes a downright shock! And you're right--I do need to 'take an activity away' when I add something, which is a whole other list...blah! Thanks for reading :-)Christinehttps://www.blogger.com/profile/15572539463133157833noreply@blogger.comtag:blogger.com,1999:blog-3684138792681660769.post-39976534233713544442012-11-15T21:51:43.667-08:002012-11-15T21:51:43.667-08:00Oh so true! And well said! I miss walks on the bea...Oh so true! And well said! I miss walks on the beach and even going out for coffee. Offers for social outings require a grinding of gears as I check with my many lists and pain levels :). Adding an activity means something else has got to go :)<br /><br />And I love what you said about living inside CMT. It feels like a cage sometimes- grrr. But we make the most of it and we sure appreciate fresh air when we get a little break from symptoms :)Lenkahttps://www.blogger.com/profile/03832791375861465119noreply@blogger.comtag:blogger.com,1999:blog-3684138792681660769.post-66466609703834039422012-11-15T16:01:31.058-08:002012-11-15T16:01:31.058-08:00Definitely...it certainly makes the bumps in the r...Definitely...it certainly makes the bumps in the road a lot less bumpy! :-)Christinehttps://www.blogger.com/profile/15572539463133157833noreply@blogger.comtag:blogger.com,1999:blog-3684138792681660769.post-26048868267991934422012-11-15T15:52:06.853-08:002012-11-15T15:52:06.853-08:00I hear ya! I've forever credited a sense of h...I hear ya! I've forever credited a sense of humour as my most important tool to roll through this life!Anonymousnoreply@blogger.com